Ehlers-Danlos Syndromes (EDS) are a range of connective tissue disorders, which are rare.

Connective tissue is found between other tissues in the body, such as skin, ligaments, blood vessels and internal organs, and they support and protect the body.

EDS is caused by gene mutations that make connective tissue weaker. It can be inherited but sometimes appears by chance in someone with no family history.

There are 13 types of EDS, including Hypermobility EDS, Classical EDS and Vascular EDS.

Symptoms can vary depending on the type of EDS, but can include:

Hypermobile joints

Stretchy skin

Fragile skin that breaks or bruises easily

Various tests can be done to diagnose Classical and Vascular EDS, including genetic testing, skin biopsy and ECG.

There is no cure for EDS, but medical professionals can offer help to manage symptoms. 

A very few SCAD patients have been diagnosed with some types of EDS but it is unknown what the link is.

FAQs

Ehlers-Danlos Syndromes are a range of connective tissue disorders, which are rare.

Connective tissue is found between other tissues in the body, such as skin, ligaments, blood vessels and internal organs, and they support and protect the body.

Read more about EDS

Various tests can be done to diagnose Classical and Vascular EDS, including genetic testing, skin biopsy and ECG.

A very few SCAD patients have been diagnosed with some types of Ehlers-Danlos Syndrome (EDS) but it is unknown what the link is.

Patients with Vascular EDS may have aneurysms (bulges in arteries).

Some people with EDS have mild symptoms while for others they can be disabling. Some of the rare types can be life limiting and life threatening.

Read more about EDS

There is no cure for EDS, but medical professionals can offer help to manage symptoms.